Friday, September 2, 2011

Awaiting the rebound...

Ahh, a nice long weekend ahead of us. I wish you all a very happy Labor Day weekend, whether you're heading out or staying in. Take the chances you get to love on your families, and stay cool! (temperature-wise, not cool as in awesome...)

Levi has continued to do well this week. His counts were completely bottomed out for a few days, but are now starting to show slight little hints that they might be getting ready to come back up. His platelets doubled since yesterday, and he had a good number of monocytes in his counts this morning. His ANC showed 18 yesterday, but today was back at 0, so still no immune system. Once it starts to get in the hundreds, then we'll start to be a little less paranoid.

When Steph talked to the doctor this morning, he mentioned that if his counts start to go up this weekend, he may get to go home! Wow. That would be awesome. But, we're not going to get our hopes up, we've been down that road before. We'll just take our encouragement from the fact that he seems to be bouncing back rather nicely this round and that each day he does better. And, we'll continue to pray that he stays healthy and steers clear of infections and fevers, both of which could derail things pretty quickly. Of course, we would love him to come home this weekend. But we're not getting our hopes up... Have to keep telling myself that... :)

Stephanie is doing well, she has been cranking out sewing projects at a feverish pace. I am impressed with what she can do with limited space and the one or two hours a day that she can work on her projects while Levi naps. I think she really perked up when the doctor said something about coming home. Oh yeah, we're not supposed to get our hopes up...

Caylee is doing well, she had another good week at preschool. I am glad that they send her schoolwork home with her everyday, it proves to me that she is actually being productive there. According to her, apparently all she does is sing songs and eat snacks. It's good to have objective evidence otherwise. I took her down to Steph's parents' last night, where we enjoyed a great meal and Caylee ate her own body weight in sweet corn.

I came down to the hospital this afternoon. I brought Levi some Hot Wheels - he thought they were just about the coolest thing ever. I am going to have to make it a practice to bring him a couple each visit. Pretty soon, he'll have a collection that rivals his daddy's, although I am actually letting him take his out of the packages (as much as that kills me). He showed off his hoops skills - apparently he's been practicing this week. I think another few weeks and he'll be able to take me in a game of horse. Maybe we'll even get to practice at home soon! (oh yeah, not supposed to get our hopes up...)

We have a pretty busy weekend ahead of us. Steph's parents are bringing Caylee down to the hospital tomorrow morning, and she, Stephanie, and I will head down to Seymour to help my little nephew Xavier celebrate his first birthday. Steph's parents will hang out here with Levi while we're gone. Then Steph and I will head back up here tomorrow night while Caylee stays with my parents down there. Gonna be a lot of miles on the road, but looking forward to seeing everyone. It will be tough to be without Levi for the birthday party, but it's just a temporary thing - soon he'll be done with treatments and get back to being a healthy little boy and we can resume some semblance of a normal life.

That's it for now - we'll keep you posted on whether or not we get to go home in the next couple of days. Of course, we're not getting our hopes up. Maybe if I keep telling myself that it will actually work...

Thanks for all your prayers and support. Please pray specifically that Levi can stay away from sickness and fevers right now, it's such a vulnerable state to be without an immune system. We love you all dearly, and thank God daily for our family and friends.

Have a great weekend,
Michael, Stephanie, Caylee, and little Levi


  1. It's so nice to hear some good news. Thank you for taking the time to keep us updated on Levi. Have an amazing weekend. Stay safe in all your travels. <3

  2. So good to hear that Levi is doing good. He certainly looks better in the pictures. Have a good week-end and give Xavier a big birthday hug for us. I will get his card made and sent hopefully today. Thanks so much for the pictures. We really were glad to get them. May God protect all of you as you travel and we pray that Levi will be able to go home soon.

    Love to all,
    Grandpa and Grandma G.

  3. Hi
    My name is Jenna and i came across your site. Levi is a precious, special earthly angel. He is a courageous, strong and determined fighter. He is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease, and I was born with a rare life threatening disease, and i love it when people sign my guestbook.