Sunday, August 21, 2011

Continued progress...

Hi everyone,

I hope you all had a great weekend. Ours was busy, but fun. I took Caylee down to Steph's parents' house on Thursday night, then came back up here and frantically packed for the weekend. On Friday, I rode the bike down to Indy, and after a minor spark plug issue and a stop at Kokomo Harley-Davidson, I made it down to the hospital to see Steph and Levi. And I was in for a surprise - Levi was WALKING on his own! Not just in the room, but up and down the hallways. He had taken a few steps for Steph on Thursday, but on Friday everything must have clicked for him again and he was all over the place. He knew he was being a big guy, and was pretty proud of himself as he cruised up and down the halls. He even made a stop in the toy room to play with another little patient. It was great to spend the night with him; he was in a very playful and happy mood, and enjoyed the attention Steph and I showered on him.

On Saturday, my mom came up to the hospital to watch Levi so that Steph and I could escape... We hopped on the bike and rode to Marion to join our chapter (and all the other Indiana chapters) at our CMA Indiana State Rally. We had an awesome ride, and the rally was incredible as usual. We met several new people and got to hang out with some great friends that we don't get to see very often. Everyone we talked to asked about Levi, and we loved filling them in on how well he was doing with his treatments. We enjoyed the much-needed fun, fellowship, and night away; it was hard to leave this morning after our church service.

Levi and his grandma were doing well when we got back to the hospital. I think Levi kept her busy, but I know mom loved her time with him. She perfected the intricate art of chasing a toddler with an IV pole; it sounds easy, but it doesn't take much for little legs to get tangled in the IV tubing! I rode back up here to Warsaw this afternoon, and Steph's parents met me here with Caylee. She was very happy to see me, and after a quiet dinner and a Tom & Jerry DVD, I think bedtime will be arriving shortly.

The doctors are pleased at Levi's progress, and we love having our little boy back. He will be finished with his second round of chemo early Tuesday morning; then it's back to the "lets watch his counts drop then wait for them to come back up" game. However, we are still riding high and praising God for Levi's test results from last week. I think we will be a little less apprehensive this recovery phase because we know he is responding to treatment. It will be harder to keep him in the room now that he's mobile, but we will take an energetic, cooped-up, stir-crazy toddler over a sick little boy who couldn't even lift his head up any day.

Thank you all for your continued love, support, prayer, and encouragement. For all of you CMA readers out there, it was great to see you all this weekend. We love you all.

Michael, Stephanie, Caylee, and little Levi


  1. Love the update!! Glad to read you all had a nice weekend. Way to go Levi on the walking little dude!! Thinking of you all.


  2. Thanks for the updates. Love the pictures too. Prayers for you and "my little boyfriend"! I miss him.

  3. How adorable is that picture of him walking with Steph?!! Love to see that!!! :) megan

  4. Was so great to hear he is walking again. Grandpa and I got a kick out of his car with the bird in the front. Also the picture of he and Steph coming down the hall was great. Glad you got to go on the motorcycle trip. Praying that the chemo does its job and that he will get to come home again soon.

    Love, Grandpa and Grandma G.

  5. My name is Sheryl Staehle and I am the office coordinator at Community Christian Church in Jefferson City, MO. We have placed little Levi on our prayer list and our congregation prays for Levi and your family daily. Your journey came to us through a friend of a friend here at the church, Jack and Meryl Atterberry. She sent me a copy of the link to your blog and every day I come in for work I check for updates on Levi's status. I am the mother of four children, 19, 13, 9 and 5. We have been fortunate to have healthy children and each day when I ready your posts I am reminded how lucky we are and your undying love for your child puts those frustrating days of raising children in prospective for me. You and your wife are truly amazing, and I mean AMAZING people!! Words can not even describe how strong and courageous little Levi is. I just wanted to say Thank You for sharing your journey with so many people. What courage and strength you bring to so many with your writtings. When our Pastor comes into the office and sees tears streaming down my face, he simply asks "How's Levi today?". You, your wife and two beautiful children are such an inspiration to anyone who knows or reads about Levi's journey. I will continue to pray that God with keep His healing hands on Levi and give you and Steph strength to get through each day.
    Blessed be always.......

    Sheryl Staehle
    Community Christian Church
    Jefferson City, MO

  6. Thank you everyone for the encouragement!

    And Sheryl, it's great to meet you. Thank you for the very sweet note, your prayers and support mean so much to my family!

    God bless you all,