Saturday, July 30, 2011

Sleepy Saturday night...

Hi everyone,

I hope you are all enjoying your weekends. Stephanie and I got back a little while ago from a mini-date, and Levi just went to bed. Time now to pick something out on Netflix and see if we can make it through a whole movie without passing out.

But first, I wanted to give you all an update on Levi. Yesterday was interesting, he had some very high fevers off and on throughout the day. At one point in time it was 104.9, which is the highest I have ever seen. He was not doing well at that point, and was very shaky and out of it.

Later, however, the combination of your prayers and a dose of Motrin had him back down to 98.3 and feeling good. He stood on his own (while holding on to the window ledge) for quite awhile, and was back to playing, talking, and being just a little ornery. It was great to see him feeling better. He slept very well last night with only one little stretch of crankiness from about 3:30am - 4:30 am. His fever went up a few times during the night, but never to the level it was earlier in the day.

He had a pretty good day today. He ate like a champ, and played hard. We had a lot of good hang-out time. He had some fevers off and on throughout the day, but again, nothing near as high as yesterday's. We had a different doctor rounding today from Riley downtown, and she seems to think that the fevers may be related to the rapid regeneration of his bone marrow, which can cause fever and flu-like symptoms. His counts improved quite a bit today (although ANC is still 0), and all signs are good that it will start going up soon. All of his viral and infection tests and panels have come back clear. She said that, while she is treating the fevers seriously, there is nothing to be alarmed about or that is making her believe that the leukemia is returning. She was still hopeful that maybe Levi could come home at some point this next week. It was encouraging to hear her perspective, and we are praying that his fevers subside and that she's right.

Thank you all for your prayers. They are working, and it is clear that God is continuing to work in Levi's little body. We are loving the happy playful times with him, and are "cautiously excited" that maybe we'll all get to be back home together as a family for a few days very soon before he starts his second round of chemo.

We love you all, and will continue to keep you updated.
Michael, Stephanie, Caylee, and little Levi


  1. So very thankful!
    I joined a friends daycare this week for a special activity. As they prepared to eat, they had a blessing and then a "special" prayer time. About 15 little sets of hands folding praying for Little Levi.

    M. Dearing

  2. Good update!! Bless little dude's heart. Thinking of you all.


  3. You have been in my prayers daily. My 4 year old daughter Macy was asking about baby Levi and says to tell you that she will pray for him...It is amazing how God hears the simple prayers of little ones. May God heal that precious creation of his and bless you both beyond measure. Sam and Macy Adams

  4. How awesome! I love the prayers of little ones; they don't have any agendas or selfish motives. Just purely talking to God. What a special thing. Thanks for praying Macy!!