So, our phone finally rang, and it was actually the doctor's office!
Levi's bone marrow test came back showing a leukemia level of 30%. I asked the doctor if this was concerningly high, and he said that 100% was high, and this was in the "ok" range. It is obviously higher than what we wanted to hear, but I will trust his judgement.
He told us that this test result does not change his plan of attack, which is to monitor this very closely to see what it does. He mentioned that maybe this will be one of those "miracle" cases where it goes away on its own. Good thing we are trusting a God that is known for His miracles! He wants to give Levi a chance to beat this on his own, and doesn't want to subject him to chemo if we don't have to just yet. He says the older Levi gets, the better he will be able to cope with the chemo (if its needed). If he underwent chemo right now, he would likely have to have an NG tube for nourishment and would be more prone to infections.
So, going forward, we will take him in for weekly blood tests (which thankfully can be done here in Warsaw) and plan on taking him back down to Riley Hospital in a month or so for another bone marrow test. I have to admit, it feels a little strange to know that Levi has this disease but to not be acting on it. I guess that monitoring it is a form of "acting", but it doesn't necessarily satisfy mom and dad's desire to fight this thing with all we have and to not just beat it, but destroy it... It is reassuring, though, that our doctor is consulting with the 4 or 5 top AML leukemia experts in North America, and they are confirming this plan.
We are praying that God will help Levi beat this on his own, and that our little guy will be one of those handful of "miracle" cases!
Love you all,
Michael & Stephanie
Mike and Stephanie,
ReplyDeleteYou are acting on it, you are praying for Levi's healing. That action alone can heal him. God put Doctor's on this earth to help us and you are seeking their knowledge as well but the most important thing to do is pray and you are. Be strong and thanks for the update. God Bless, Briana Kessler
Bless his heart. You are doing more than you think by being loving, caring and diligently watching your little guy. Give him a BIG hug for me. Please tell Ms Caylee we all miss her!
ReplyDeleteLove,
Chris
MIRACLES DO HAPPEN EVERY DAY AND I TRULY BELIEVE LEVI'S HEALING WILL BE ONE OF THEM!!!! PRAYERS ARE THE BEST TOOL WE HAVE AND YOU CAN FEEL THE HEALING ENERGY COMING THROUGH FOR YOUR LITTLE GUY!! Thanks for the updates KIDS! Lots Of LOVE AND Prayers! Brenda&Gene xxxooo
ReplyDeleteStephanie-
ReplyDeleteMy heart has been broken ever since we found out this news. I have been praying for you, Michael, Caylee, & Levi everytime you come into my thoughts! I know that God can heal the little guy, keep the faith & stay strong! I am praying with you!
~Ashley
Dear Michael, Stephanie, Caylee and Levi,
ReplyDeleteWe are praying for you all the time. Any spare moment we pray. We know that God will take care of Levi and cure his disease. God can show His power through this battle. Even unbelievers won't be able to doubt that He is God. It will be Levi's testimony.
Grandma and Grandpa Gordanier